The five of us are in a place of drawing...
...it is, however, different for each of us.
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I am drawing information about neuromuscular diseases from every source I can get my hands on. I am finding , through my draw of resources, valuable information that will serve the purpose of bringing the highest quality of life for my daughter, Ella as well as for my family. I draw information from reputable websites, those affiliated with major research centers, hospitals, and organizations that all are in the business of finding treatments and cures for these debilitating and often life-threatening diseases. Each site gives me more resources from which to draw. I engage in an intellectual endeavor at this time to educate myself for the sake of my family.
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Lindsay draws strength, comfort and expression through the interactions of others in her world. She reaches out to those she loves and they reach to her, to us. She draws them in with her compassion for life, her family and for all children. She draws the positive emotion and energy from people & from relationships. She is practiced in the art of giving and receiving; connecting wholly to people of all ages. Her draw is one that brings people to her and allows her to become a vital part of each life she touches. She draws the strength she needs to help her child, Ella, as well as her entire family.
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Ava's draw is bit more concrete. She delights in the production of artwork, per se. She will spend hours a day coloring, creating, and exploring the world of art in her 4-year-old ways. She takes pride in her ability to stay within the lines while coloring in her birthday-gift coloring pads. She makes stories to go with them and shows us her "projects" throughout the day. She takes the beauty of nature she witnesses around her daily and draws it on her blank "square papers" (it's blank white copy paper). She makes scenes of intricate details including flowers, seeds, trees, people, rain, soil, grass, animals and more. She sometimes spends long stretches of time drawing and comes to us upon completion of her "work", as she calls it, to share the new "machine" that she has just designed to help her sister crawl and walk. Her drawings are her way of providing love, support and hope for her sister and family.
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Henry's draw is two-fold. He is a highly physical person who exhibits an equally high emotional persona as well. His physical draw consists of making things move...pulling them to him or away from him. Gathering every means possible to make things move...you would think he invented the wheel since he gets so absorbed in the movement of objects as they roll. His emotional excitement and pleasure derived from this movement rings true for Henry. His emotional draw also plays a role in our everyday lives when he can't seem to get things to work the way he thinks they should. He finds frustration in his daily efforts to explore the world around him. He draws himself within as he experiences failure. He does, however, take great pride in showing that he has learned how to handle the high emotion he is graced with as he travels through his world, his days. He draws himself outward again to once again tackle this world. His physical draw will become instrumental in helping his sister be as mobile as possible, and he'll draw her emotions into the world of movement as they explore it together.
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Ella's draw. There's a variety of ways to approach her draw. Of course, there is the physical draw of her blood that will occur on July 26 to be sent to the Mayo Clinic for the 3-6 week testing period of her genes to determine if she has SMA (Spinal Muscular Atrophy) or not. Another way to describe Ella's draw is to speak of the way she draws people to her. She has already, at the tender age of one year, an incredible support system of family and friends, professionals and strangers, at her disposal. She has drawn this support system to herself through her personality that is ever-increasingly sweet. She draws love, hope, and faith to her world as she will require all three to live her life to the fullest potential. And of these three the love drawn to her will, by far, be the most important to her and her family.
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